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Epilepsy awareness day is next week

By Isabel Hook

Posted March 20, 2024

Sixty-five million people have epilepsy and 50 percent of cases are undiagnosed. (Purple Day)

Epilepsy Awareness Day, also known as Purple Day, is March 26.

Epilepsy is a disorder characterized by repeated seizures, according to American Association of Neurological Surgeons.

“A seizure is usually defined as a sudden alteration of behavior due to a temporary change in the electrical functioning of the brain,” said the website.

Purple Day is an “international grassroots effort dedicated to increasing awareness about epilepsy worldwide.”

Wendy Trueblood Miller, professor and executive associate dean of research at the IU School of Nursing, said, "We know that people with epilepsy can have a lower quality of life, they can have an increase instance of social isolation, depression and anxiety, so one of the things epilepsy awareness can do is help with bringing light to the need to support people with epilepsy.”

Sixty-five million people have epilepsy and 50 percent of cases are undiagnosed.

Seizures have different symptoms, but some of the most common are “blank stare, muscle spasms, uncontrolled movements, altered awareness, odd sensations, or a convulsion,” said Purple Day.

Epilepsy has many causes.

“Children may be born with a defect in the structure of the brain, or they may suffer a head injury or infection that causes their epilepsy,” said the American Association of Neurological Surgeons.

Epilepsy can also happen at any age. Many times, a child with epilepsy will outgrow it.

For adults, the causes can include strokes and tumors.

The most common causes for epilepsy over the age of 65 are strokes and Alzheimer’s disease, according to the Association.

Common treatments are medication, changing your diet and surgery.

Trueblood Miller shared that people with epilepsy can manage it.

“You can live a great life in the context of having epilepsy," said Trueblood Miller. "We just want to make sure people have the right resources and support, so it shouldn’t be seen as something that limits people from reaching their goals.”