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‘Right To Try’ Bill, Partially Inspired By Hoosier Boy, Close To Final Passage

By Sophia Saliby

Posted March 22, 2018



A bill with strong Indiana connections that would make experimental drugs more accessible to terminally ill patients is now one step closer to becoming federal law. The House of Representatives passed the Right to Try Act Wednesday night.

The bill is, in part, named for Jordan McLinn, an 8-year-old Indiana boy with Duchenne muscular dystrophy. That disease is fatal. Jordan's mother, Laura McLinn, started advocating for the law in the state of Indiana in 2015. She wanted the right for her son to try a drug that was still in clinical trials, even though he was too young.

State legislators passed a bill authorizing the ability for terminally ill patients to try experimental drugs in 2015.

Thirty-seven other states have similar measures. McLinn now lobbies for a federal version of the law. She has worked with Vice President Mike Pence, who she also worked with on the Indiana legislation

"Indiana has really taken a strong leadership role in this entire movement starting way back to when our state legislators passed it with unanimous bipartisan support," McLinn says.

The Senate passed a bill with similar provisions in August. Sen. Joe Donnelly (D-Ind.) is a sponsor of that bill.

Legislators from both the House and Senate will now work to make a uniform bill that could be signed into law by President Trump.

Trump has supported the law and mentioned it by name in his State of the Union address earlier this year.



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